Creutzfeldt-Jakob disease (CJD) is a rare, degenerative and fatal brain disease 
that appears to be caused by an abnormal form of a protein called a prion. Due 
to the lack of an effective treatment for CJD, support for patients and family 
members is crucial. Appropriate education of the healthcare community on this 
rare disease and provision of palliative care are critically needed. The CJD 
Foundation and CJD Insight were formed to provide services to patients and 
families affected by prion diseases.