Sudden unexpected death in epilepsy (SUDEP) is the most tragic potential outcome 
of epilepsy. Despite recommendations from epilepsy organizations in the United 
Kingdom and the United States, many neurologists choose not to discuss the risk 
of SUDEP with their patients with epilepsy. Yet, the literature clearly 
demonstrates that people with epilepsy and their caregivers want to know more 
about SUDEP. When health care providers do not provide information, people with 
epilepsy turn to other sources, risking misinformation and potentially 
increasing anxiety and distress. Sharing accurate information about SUDEP can 
optimize epilepsy self-management and engage the person with epilepsy as a 
partner in their own care. Information about SUDEP must be part of the 
comprehensive education given to all people with epilepsy.