Care for patients with Duchenne muscular dystrophy (DMD) is poorly standardised. 
There are many interventions in different systems which are known to improve 
outcomes in DMD but these are not uniformly applied. This leads to inequality in 
access to treatment, as well as problems for planning controlled trials of 
future therapeutics. A worldwide effort is underway to generate care guidelines 
for DMD, which involves the Centre for Disease Control in the USA and the 
TREAT-NMD network of excellence for neuromuscular diseases in Europe. In advance 
of the full consensus document, TREAT-NMD has worked on the generation of brief 
standards of care for DMD, which are presented here and are available via the 
TREAT-NMD website (http://www.treat-nmd.eu). Guidelines are presented for 
diagnostics, neurological follow up, gastrointestinal and nutritional issues, 
respiratory and cardiac care as well as orthopaedics, rehabilitation, 
psychosocial interventions and oral care.